My Home Life is a UK-wide initiative that promotes quality of life and delivers positive change. Their vision has three components, which together are relevant not only to older people but also relatives and staff in care homes. Best practice themes (identifies what older people want and what works), relationship-centred care (provides the underlying approach to deliver best practice), caring conversations (helps us to achieve relationship-centred care) are presented.
Today, virtually 100 percent of medical school–affiliated teaching hospitals have palliative care teams. Recent data show that the younger the physician, the higher his or her familiarity and comfort with palliative care. Resources for teaching these skills are widely available and could be standardized and scaled to reach all trainees. A working group of the American Academy of Hospice and Palliative Medicine is developing a set of competencies, milestones, and certain essential tasks physicians should know, called “Entrustable Professional Activities,” in palliative medicine for medical residents.
Patients with metastatic non–small-cell lung cancer have a substantial symptom burden and may receive aggressive care at the end of life. The authors examined the effect of introducing palliative care early after diagnosis on patient-reported outcomes and end-of-life care among ambulatory patients with newly diagnosed disease.
This video relates to a landmark study on the integration of palliative care during early onset of a cancer diagnosis was recently published in the New England Journal of Medicine. Here, lead authors Jennifer Temel, MD, and Victoria Jackson, MD, MPH discuss palliative care and the impressive study findings which showed patients experienced a better quality of life and actually lived longer than patients not receiving the same level of care at an early stage. Jim Windhorst, a stage IV, lung cancer patient describes how palliative care has helped him cope with his illness. For more information click here
These core values of health care must be safeguarded in our time-pressured world. Dignity in Care provides practical ideas and tools to support a culture of compassion and respect throughout the health care system. People working in health care can have a huge influence on the dignity of those who use health care services, which in turn can improve the patient experience and increase satisfaction with health care. Good communication is an essential ingredient for providing the best quality of health care and patient safety.
This edition of Contemporary Family Trends is about the experiences of dying people and their families in Canada. This report is meant to act as a conversation catalyst, helping to expand the dialogue surrounding death beyond right-to-die debates in order to form a foundation for future discussions about how we live our lives and face our deaths. To this end, Death, Dying and Canadian Families examines the historical experiences of death and dying, the changing role of families in end-of-life care and the “medicalization” of death and dying in Canada. 60 pages.
This handout outlines some of the services a home may wish to implement in order to provide palliative care to those who are deaf and blind. Some may find this resource applicable especially for the contact information contained within. 1 page.
The Quality End-of-Life Care Coalition believes that all Canadians have the right to quality end-of-life care that allows them to die with dignity, free of pain, surrounded by their loved ones, in a setting of their choice. The Coalition believes that to achieve quality end-of-life care for all Canadians there must be a well funded, sustainable national strategy for hospice palliative and end-of-life care. It is the mission of the Quality End-of-Life Care Coalition to work together in partnership to achieve this goal.
This website managed by Canadian Hospice Palliative Care Association and the Quality End-of-Life Care Coalition of Canada and is a roadmap for an integrated palliative approach to care. Changes are already underway in care settings across Canada. It features a blog, informaton for care providers, volunteers and family caregivers. Features are informative and include a service directory.